2 years later. I’m so thankful for this journey. I have learned so much about so many medical issues. I have learned so much faith. HARD faith – but when is faith not hard? I have gained so much empathy for so many families, many I’ve met only BECAUSE of this journey. I have so…
Hearing loss, not joy loss
After weeks, months even, of rejoicing in milestones and victories, I was reminded. After months of unneeded therapies (okay, not ALL the therapies), I remembered. Oh yeah. You have this syndrome. Not that I forgot, really. Just forgot that there were still things to rule out, stones to turn over. We know it’s a “mild”…