After weeks, months even, of rejoicing in milestones and victories, I was reminded. After months of unneeded therapies (okay, not ALL the therapies), I remembered. Oh yeah. You have this syndrome. Not that I forgot, really. Just forgot that there were still things to rule out, stones to turn over. We know it’s a “mild”…
“A single day in your courts is better than a thousand anywhere else! I would rather be a gatekeeper in the house of my God than live the good life in the homes of the wicked.” Psalms 84:10 NLT To be in your courts, in your presence is more fulfilling than anything else. Nothing else…
Christmas was prefaced with a surgery for our middle child. Our sweet Noah needed a surgery common to people with 22q11.2 deletion syndrome, called pharyngeal flap surgery. Not a life-threatening surgery, but definitely a life-disrupting surgery, as all surgeries are. Many prayers, plans, and provisions from God alone were laid down before we left for…
Tomorrow, Noah will be re-evaluated for his need for physical therapy services. This will be his 5th re-evaluation for PT. He’s been in since he was 9 months old. His therapist, his wonderful therapist, who has been with him since the beginning, who first gently recommended that we consider genetic testing, has hinted that he…