It’s so beautiful to know that, regardless of yesterday, you are still with me this morning and I am with you. You are mine and there is no act, mistake, or sin that I can do to change that. I am firmly and permanently in your heart, in your love in your protection, because of…
Pathways and rivers – Trusting God through the wilderness of a new diagnosis
September 2016. I answered a phone call from my son’s specialist while walking into work. I heard the words, “chromosomal syndrome” and “22q11.2 deletion,” and it felt like my world literally shook. I literally had to sit down in an empty waiting room of the hospital where I worked at the time. Over the next…
How Jesus dealt with anxiety (and how we can follow him in this, too)
“Jesus understands everything you’re going through.” “For we do not have a high priest who is unable to sympathize with our weaknesses, but one who in every respect has been tempted as we are, yet without sin.” Hebrews 4:15 Anyone ever read that and think, “Yeaaahh, but not ____” or “But my situation did not happen back then”…
Knit together – When you need a reminder that your hot mess is full of purpose
Psalm 139:13-14: “For You formed my inward parts. You knitted me together in my mother’s womb. I praise You, for I am fearfully and wonderfully made. Wonderful are Your works, my soul knows it very well.” Wonderful are your works. I have prayed these verses when trying to understand and trust that my issues, my…
half a cup of Saturday morning coffee
I heard kiddos fussing and stirring before 7 am. Saturday. Please, not yet. I just want a little longer. We get up. We had fun last night, setting up the projector in the garage. It was supposed to be in the driveway against the garage door, but a sudden windstorm changed those plans. So we…
The first step toward Eternity begins NOW
John 17:3 — And this is eternal life, that they may know You, the only true God, and Jesus Christ whom You have sent. John 17:17 — Sanctify them by your truth. Your word is truth. Eternal life can begin now, at the moment of believing on Jesus Christ. The moment we believe, we are…
Waiting
I heard the noise before I opened my eyes. I wondered how many of them were up already. I fought back temptations of anxiety thinking of the mess that was surely already made. Fuel up. Don’t go out there empty and unarmed. Being a blessing to people includes the little people who live with me…
To the mama at the earliest screening for the kid-friendly movie
I see you. And, probably, I get you. I figure you’re probably like me, torn between wanting to have nice family activities and fearing public meltdowns. Maybe you made the plans a few days ago, and maybe you even dreaded coming after solidifying the decision. But some sense of normalcy… the luxury of simply going to…
Pharyngeal Flap Placement Surgery
Thought I would provide a little education /explanation of the surgery Noah had. It’s a little difficult to explain, but here I go! Noah has velopharyngeal dysfunction, which is common in people with 22q11.2 deletion syndrome. It means that his soft palate muscles (velum) and the muscles of the back of his throat (posterior pharyngeal…
Radiator
It’s been a week. Actually, it’s been a couple of weeks. Draining weeks. We’ve been going. We’ve been planning. We’ve been fighting with insurance companies, doctor’s offices, hospitals. In the probably 16th day of the Battle with the Medical Bill, I walked out of my building. I feel empty, drained, deflated, flat. I just wanted…