Thought I would provide a little education /explanation of the surgery Noah had. It’s a little difficult to explain, but here I go! Noah has velopharyngeal dysfunction, which is common in people with 22q11.2 deletion syndrome. It means that his soft palate muscles (velum) and the muscles of the back of his throat (posterior pharyngeal…
Radiator
It’s been a week. Actually, it’s been a couple of weeks. Draining weeks. We’ve been going. We’ve been planning. We’ve been fighting with insurance companies, doctor’s offices, hospitals. In the probably 16th day of the Battle with the Medical Bill, I walked out of my building. I feel empty, drained, deflated, flat. I just wanted…
“On this day…” / Hello 22q / Walking by faith thus far
So many titles I could give this post. I can’t believe that it was just one single year ago, 12 months ago that we received a diagnosis. It feels like this has always been there. Thinking back about all the appointments we’ve been to, they all kind of bleed together, not a lot of definition…
To my husband
Reading 1 Timothy 3 this morning, I can’t help but marvel at all the qualities of these godly men that you already possess. I am so grateful for you, for all of you, the whole way through. I love how fun you are. I love that you’ve quietly taken over a sizeable chunk of housework.…
Proper equipment
“Moreover his mother used to make him a little robe, and bring it to him year by year when she came up with her husband to offer the yearly sacrifice.” I Samuel 2:19 NKJV Reading about Hannah, I am amazed at her commitment to the Lord. She prayed, wept before the Lord, completely transparent and…
The Witching Hour and Cookie Crumbs
“Look at my EYES!!” Oldest has a cookie over each eye. There’s a fine layer of cookie dust over his whole face. His WHOLE face. I shake my head again as he chomps cookies like Cookie Monster. I have already griped about messy eating 4 times during the meal. I sigh and push his chair…
Order in chaos
My oldest son can be rather dramatic. He only thinks in extremes. The power went off at our house. When I was explaining to him that the lights and electricity was off, he interrupted me with “FOREVER?!”. No… No, son. Not forever. If he earns himself a punishment, I have to convince him that loss…
Isaiah 61:1-3
The Spirit of the Lord God is upon me, because the Lord has anointed me to bring good news to the poor; he has sent me to bind up the brokenhearted, to proclaim liberty to the captives, and the opening of the prison to those who are bound; to proclaim the year of the Lord’s…
“And step by step, You’ll lead me…”
My advice to new mommies is often this: don’t read the baby blogs. Take the parenting advice articles with a grain of salt. Because, y’all. It can be maddening. It can be exhausting. It can be terrifying. You can’t feed your baby this too early. No, wait, you can’t feed your baby this too late..…
Mountaintop
In honor of Mother’s Day, my crafty husband snuck around and arranged to sweep me away to Fort Davis for a night. What I thought was a trip to Sonic after work turned into a surprise getaway. After dropping the kids off with my wonderful in-laws, I felt like I was glowing. I couldn’t quit counting…